LymeDisease.org and different Lyme advocacy organizations have taken half within the course of main as much as the Oct. 24 occasion. We encourage you to tune in.
The An infection Related Persistent Situations Understanding and Engagement (ICUE) Challenge proclaims an upcoming webinar that guarantees to make clear the urgent wants and priorities of the an infection related persistent circumstances (IACC) group.
We invite you to affix us as we unveil the important thing findings from a report summarizing engagement periods with collaborating organizations over the previous yr.
Date: Tuesday October 24, 2023
Time: 9:00am PT / 12:00pm ET
Webinar Hyperlink: https://bit.ly/IACCPACWebinar
This webinar will present a complete overview of the findings of a brand new report on the highest priorities, important wants, and future targets associated to an infection related persistent circumstances.
The report’s findings have been gathered via a collection of workshops that introduced collectively numerous illness teams and affected person organizations.
Contributors in these focus teams included folks dwelling with Lengthy COVID, myalgic encephalomyelitis/persistent fatigue syndrome (ME/CFS), postural orthostatic tachycardia syndrome (POTS) and different types of dysautonomia, mast-cell activation syndrome (MCAS), Ehlers-Danlos syndrome (EDS), Lyme disease, and different post-viral or infection-associated circumstances.
Key subjects to be lined through the webinar embody:
- Neighborhood Voices: Hear immediately from these dwelling with infection-associated persistent circumstances, sharing their experiences and views.
- Precedence Areas: Uncover essentially the most pressing shared wants and issues recognized by our group.
- Future Objectives: Find out about our collective imaginative and prescient for advancing analysis, consciousness, and assist for IACCs.
- Motion Steps: Discover out how one can become involved and make a distinction within the lives of these affected by IACCs via our newly forming An infection Related Persistent Situations Affected person Advocacy Coalition.
We encourage all stakeholders, together with healthcare professionals, researchers, sufferers, caregivers, and advocates, to attend this informative session. Collectively, we will construct a stronger, extra resilient IACC group and work towards a more healthy future.
Be part of us on Tuesday October 24 at 9am PT / 12pm ET by clicking the next hyperlink to register: https://bit.ly/IACCPACWebinar
This undertaking is supported by the Facilities for Illness Management and Prevention of the U.S. Division of Well being and Human Providers (HHS) as a part of a monetary help award totaling $250,000 with one hundred pc funded by CDC/HHS. Contents are these of the creator and don’t essentially characterize the official views of, nor an endorsement by, CDC/HHS or the U.S. Authorities.