Caroline Saksena — Concussion Alliance

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This put up about Caroline was one in a sequence during which interns within the Winter 2023 cohort interviewed previous interns about how Concussion Alliance impacted their lives going ahead. The under interview follows up with Caroline, who’s captivated with healthcare coverage and patient-centered therapy. She was a biology main and neuroscience minor at Carleton Faculty. To be taught extra, see Caroline Saksena’s profile web page. Sam Gossard, a sophomore psychology main at Carleton Faculty, carried out this interview. See Sam Gossard’s profile web page.

Abilities and suggestions Caroline discovered from her internship

Caroline created the net web page “What Occurs to Your Mind When You Get a Concussion?” throughout her internship. From her analysis, she discovered in regards to the neurobiology of concussions and translated that right into a useful resource that folks can entry to elucidate why they’re experiencing signs. She catered this internet web page to a broad viewers, so she tailor-made her writing to make it legible for everybody.

I believe the largest writing ability I took away was having the ability to cater a presentation, a writing piece on your viewers in a approach that they will perceive, as a result of generally you may be writing to people who have precisely the identical information base as you, however many of the instances you will not be.

Working in a digital setting comes with its challenges. Socially, it may be arduous to attach with individuals, however Concussion Alliance has built-in social actions for interns to get to know everybody. Caroline additionally obtained to know her coworkers outdoors of the designated social instances.

I believe one other piece I took away from the internship, unrelated to the actual tasks, however as a distant work factor typically, was that it helps when you understand the individuals that you simply’re working with every part, however significantly with a distant group, it may be more durable to get to know everybody on massive Zoom conferences, and so one factor that I did was I reached out to my coworkers type of like one-on-one and was like, “Hey, would you be eager about Zooming with me for like 10 minutes simply to say hello, simply because I do not know you and I believe I wish to get to know you?” And I believe by simply doing that little step of proactively reaching out to individuals, that made the entire internship much more enjoyable.

Her personal concussion expertise

When Caroline was about 15, she had her second concussion. She observed she had related signs as her first concussion and instructed the nurse practitioner on the physician’s workplace that she thought she had a concussion. Her signs had been disregarded, and she or he was instructed she can be okay. She describes her interplay under:

“Hey, I’m 90% certain that I’ve a concussion. It feels precisely just like the final one did. Are you able to assist me out? What ought to I do?”

“Oh, it is arduous to inform if it is a concussion or not. Simply the way in which you are describing it may very well be a complete variety of different issues. You might need an electrolyte imbalance, you may simply must sleep extra,”

They didn’t give me a analysis, and that was actually traumatic for me as a result of for the subsequent week or so, I had complications, I used to be having hassle focusing with college, having hassle sleeping. I did not actually have any set plan for what to do.

Every week later, Caroline nonetheless had persisting signs regardless that she had been instructed she didn’t have a concussion. So, she returned to her physician’s workplace and restated her concern for her well being:

“Hey, I am again once more, nonetheless having signs. I am like 95% certain I’ve a concussion,”

They type of patted me on just like the shoulders like, “Oh, honey, I believe I agree. Yeah, I believe you are proper,”

I do not maintain grudges for probably the most half, but when I had been to carry one, that will be one of many only a few up there.

Fortuitously, Caroline’s street to restoration was extra clean crusing after her second go to. She was referred to a neurologist and obtained her gait retrained since her operating kind was affected by the concussion.

How has Concussion Alliance helped Caroline uncover her path ahead?

Caroline has been eager about healthcare coverage, so she contacted Conor and Malayka Gormally (the founders of Concussion Alliance), who put her involved with Alan Pearce, a concussion researcher targeted on sports-related concussions. Caroline was capable of get perception into the high-stakes politics concerned in sports activities concussion analysis:

He had numerous political pushback towards his work as a result of I suppose just like the NFL, the AFL has some huge cash and it’s counter to their backside line to be defending gamers towards concussions and CTE. And so it seems like, sadly, he had gone via numerous hardships simply politically in his profession, however his work sounded very fascinating with neuropsychology.

His one piece of recommendation was that if you are going to go into the concussion analysis area, do not research sports activities concussions.

Caroline says that her internship expertise with Concussion Alliance helped clarify the stigma she skilled from her second concussion:

I believe going via the internship expertise, I felt very validated in my experiences, each from listening to in regards to the science behind my experiences and understanding that, “Oh, if I used to be having hassle with writing in highschool throughout that point, it wasn’t simply all in my head, it was as a result of the connections that helped me with some tasks up to now weren’t there, they had been damaged, and I needed to rewire issues.”

Earlier than her internship, Caroline thought she needed to develop into a neurologist. She thought Concussion Alliance would give her perception into this doable profession path. As she thought-about varied concussion therapy fields, she realized that, emotionally, it could be too near residence. Though treating concussion sufferers appeared not an possibility, Caroline is devoted to advocating for concussion sufferers:

I’ll proceed to be an advocate and educator about concussions for the remainder of my life. I’ll maintain referring individuals I meet all over the world to take a look at CA web site assets as a result of they’re each accessible and respected.

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