Concussion care is commonly not compassionate. Quite the opposite, sufferers report back to Professor Tenovuo that they don’t really feel heard by their medical doctors. After seeing over 6000 sufferers with a traumatic brain injury (TBI), he has discovered so much concerning the signs and issues we deal with.
On this 4th episode with Professor Tenovuo, we talk about how concussion care is missing, and the way it might be improved. Should you haven’t but listened to episode 1, 2 and three, please discover them proper right here:
Desk of contents:
Concussion Tales podcast
[00:00 Melanie] If I say there may be hope for full restoration for individuals with a concussion, you say…?
[00:07 Professor McCrea] 100%!
[00:08 Professor Maas] And actually, you didn’t solely really feel it: you had been outdoors the common medical system, as a result of they weren’t eager about you.
[00:16 Professor Sitskoorn] Neuroplasticity truly opens you as much as the world. It makes it doable to develop; it makes it doable to rehabilitate.
[00:25 Professor Wilson] Traumatic brain injury has been known as a silent epidemic for that cause, as a result of it consists of modifications and disabilities that aren’t apparent to different individuals.
[00:35 Dr. Zasler] If, as a doctor, you felt you had nothing to supply a affected person, then I feel ethically, you want to say] “I don’t assume there’s something I can give you. Perhaps you must see Dr. M.”
[00:48 Professor Diaz-Arrastia] Traditionally, we’ve got known as this stuff delicate traumatic mind accidents, which means that, properly… It might be a brain injury, but it surely’s not going to have nice penalties, proper? And that’s frankly not true.
In regards to the Concussion Tales podcast
[01:05 Melanie] Welcome to Concussion Tales, a Lifeyana podcast sequence crammed with hope. I’m right here to let you recognize that you’re not alone in your post-concussion restoration journey. My title is Melanie and I spent six and a half years studying, experimenting, and coaching with a view to discover a method to heal myself from post-concussion syndrome.
After making a full restoration by the tip of 2018, I launched into this mission to make the restoration journey simpler for you. That is why I began this podcast, wrote detailed blog post and downloadable guides, provide coaching and in addition the course that I want I had again after I was recovering — educating you all the pieces that I wanted to know with a view to make my restoration occur.
On Concussion Tales, we dig deep whereas discussing hopeful tales of restoration in addition to the onerous stuff within the messy center. Let’s dive proper in!
At present, it’s time for our fourth and closing episode with Professor Tenovuo. We’re going to dive extra into his medical expertise. He shares how his observe file with sufferers who expertise post-concussion symptoms contributed to his personal development, and the way seeing over 6,000 sufferers post-concussion developed his understanding of the issues we undergo.
I personally discover this a part of our dialog the half that touched me most, and I can’t wait to share it with you! So let’s not wait any longer.
Compassionate concussion care
How did you get so concerned and understanding of all the pieces that we’re going by means of? You might be actually understanding!
[02:55 Professor Tenovuo] I feel it has taken plenty of time and seeing plenty of concussion sufferers. I began treating sufferers with TBI (traumatic brain injury) frequently within the early 90s. Once I had seen about 500 sufferers with TBI, I began feeling that I started to considerably perceive them.
Over 6000 concussion sufferers!
I haven’t saved any correct depend throughout my scientific profession, however I’ve seen properly over 6000 sufferers with traumatic brain injury. It is probably not a pleasant factor to say, however to me, it’s a fascinating group of sufferers. I be taught from these sufferers – possibly not on daily basis, however each week. Nonetheless, now and again, I face issues and signs that I’ve by no means seen earlier than. Our brains are so mysterious, and these accidents are so person that I’m not astonished by something that involves my apply.
Concussion sufferers don’t really feel heard
I feel that one of many issues that many concussion sufferers share with me is: “The physician hasn’t listened to me”. I feel that could be a main drawback with many clinicians in concussion care: they assume that they know what the affected person’s drawback is, they usually don’t truly take heed to what their sufferers are saying. The sufferers don’t get any assist if their physician doesn’t actually perceive, doesn’t really take heed to what they’re saying and even doesn’t imagine what they’re saying.
[05:34 Melanie] I get the sensation that seeing TBI sufferers your entire profession, having the persona that you’ve got, has modified you as properly.
[05:48 Professor Tenovuo] Yeah, certain, undoubtedly. Sure.
[05:51 Melanie] How so?
[05:56 Professor Tenovuo] I feel it’s a must to. Should you attempt to assist sufferers with concussion, you’ve got to have the ability to have that type of empathy. You may have to have the ability to hear what they’re saying and be capable to perceive what they imply. With out that, I feel, you can’t assist them correctly.
[06:24 Melanie] I want I had met you whereas I used to be recovering.
[06:29 Professor Tenovuo] One of many main challenges we nonetheless have is that there’s in all probability plenty of restoration potential in lots of post-concussion sufferers, however we don’t know the right way to discover it in present concussion care. After all, it helps that the physician listens and understands your issues. Nevertheless, it nonetheless doesn’t assist you to get well. So it’s a must to do one thing that permits your neuroplasticity to work and get your self again.
Neuroplasticity and neurogenesis: Melanie’s restoration
[07:13 Melanie] Precisely. That’s exactly the factor that I did as properly. Mind plasticity and neurogenesis are your mates if you want to get well from concussion. So these are the processes you need to stimulate.
Concussion care: unhealthy communication
Additionally, the best way you say it: “There are issues that we don’t know” – saying that is all the time higher than what medical doctors instructed me. A number of medical doctors, completely different medical doctors at completely different instances…
[07:40 Professor Tenovuo] “Attempt to deal with it.”
[07:42 Melanie] Yeah.
[07:43 Professor Tenovuo] “Attempt to dwell with it.”
[07:45 Melanie] “And: you can’t get well. There isn’t a risk.” Wow, you can’t take hope away from sufferers. Sure, you shouldn’t give false hope, however you can’t take hope away.
Concussion symptom recognition
That’s not one thing that you are doing. You might be serving to them by giving them house to speak and a spot the place they really feel acknowledged and acknowledged. That’s one thing that I by no means acquired. That’s one thing that I thanks for on behalf of everybody I imagine. I do know that it’s so necessary.
Our brains can get well!
If as a health care provider offering concussion care, there’s something that you just don’t know, as a result of there is likely to be plenty of restoration potential for instance, you must voice that. I’m very optimistic concerning the restoration potential of the mind, as a result of that’s what I found. I really feel that there’s a lot concerning the mind that we nonetheless don’t know but. So how are you going to say that it isn’t succesful?
I feel us, people, aren’t succesful – however our brains are able to a lot extra! Should you say: “We don’t know, but it surely would possibly be,” that’s an sincere assertion. It’s all the time higher to state that fairly than pondering unconsciously: “Secretly, I don’t know. However I’m going to let you know that it will possibly’t be finished.”
[08:52 Professor Tenovuo] Yeah.
Concussion care is missing
However that could be a troublesome activity for sufferers with TBI as a result of often these sufferers have lack of vitality they usually have poor initiation. So asking sufferers with these sorts of post-concussion issues to attempt to discover methods to get well is a troublesome mixture.
Treatment My Concussion course
[09:26 Melanie] Sure, I absolutely perceive that. That’s the reason I bundled all the pieces I needed to be taught. I don’t know all the pieces, however I do know what labored for me and I do know what took me 6.5 years to compile to seek out. I simply wished to place that on the market, in order that different sufferers can discover it they usually can do this system in two days if they might do it full-time. Sufferers can discover all the pieces with out having to seek for it, as a result of the search principally takes more often than not. Nicely, attempting issues, failing and experimenting truly takes more often than not.
Concussion care wants to enhance
That is what I’m attempting to do, and what I hope medical doctors will do ultimately to enhance concussion care. I hope they are going to say: “You may have a concussion,” – which we’ll title in another way sooner or later. “Right here is your toolbox. Let’s see how we may help you. Please come again so I can investigate cross-check you.” I feel that may be an improved state of affairs for concussion care. Please take a look at the Concussion Tales episode with Professor Andelic on holistic post-concussion care.
[10:36 Professor Tenovuo] Yeah.
Studying and screens after concussion
However then we’d have sensible issues additionally. I’m pondering of considered one of my latest sufferers who I suggested to take a look at your pages. Additionally, there are some glorious books on brain injury restoration. However the man stated that he had an issue with studying books and studying from screens. So the right way to assist these sorts of sufferers?
[11:26 Melanie] Yeah, that’s truly nonetheless a hurdle for me. I already managed to make all the pieces within the Cure My Concussion course downloadable so individuals can take heed to it. It’s out there as mp3 and PDF, to allow them to print it. Nevertheless, they must get into the course. And that’s on-line. So certainly it’s troublesome. I feel that that’s the place help techniques are available, proper? Relations and family members, we want them to assist us.
[11:58 Professor Tenovuo] Yeah.
Concussion & relations
Talking about relations: that’s additionally one vastly necessary situation, I feel. Relations are sometimes fairly uncared for in conventional medication and concussion care.
Perceive concussion issues
Relations typically don’t perceive the issue of the sufferers, or why they behave in another way, or why they’ve these sorts of issues. If the affected person has poor initiation, it doesn’t imply that she or he is lazy. It means one thing else. So if relations don’t perceive these sorts of issues, we’re inflicting extra issues for the sufferers.
Household help after concussion
We have to inform and help the household on the character of those issues. I feel that could be a very uncared for space in lots of healthcare techniques.
[13:02 Melanie] Sure, I feel that too. On the one hand informing relations or family members, as a result of as you say, it impacts them too. But additionally they’ve their very own perception techniques they usually might decide, or they could assist, or they could be overbearing. It might be each response. And alternatively, serving to them cope as properly.
[13:29 Professor Tenovuo] Yeah, it’s very aggravating for them too, as a result of their beloved one isn’t the identical individual that she or he was once.
[13:39 Melanie] True. They could have to assist sufferers discover the proper assist, as a result of it’s so onerous to seek out for them.
[13:44 Professor Tenovuo] Yeah.
Conclusion: Professor Tenovuo
[13:45 Melanie] We now have already spoken for over an hour!
[13:49 Professor Tenovuo] Time flies.
[13:51 Melanie] Sure. It has been such a very good dialog with you. I additionally really feel like we’ve got mentioned many issues. I had a script on the aspect, questions I wished to ask you, however we simply went on and on and on! I need to thanks on your time, however particularly on your perception and in addition your dedication or devotion to serving to sufferers with traumatic mind accidents.
[14:24 Professor Tenovuo] Thanks. Nicely, I feel that’s what medical doctors are for.
Questions for Professor Tenovuo
[14:34 Melanie] This concludes the 4 concussion tales episodes with Professor Tenovuo. I want with all my coronary heart that their contents might assist you to. Please be aware that you could be all the time contact me to ask or inform Professor Tenovuo one thing and I’ll relay your query or comment.
Penny on your ideas?
Now, I might love to listen to from you. What do you are taking away from this episode? Is there one thing which you could apply to your life straight away? Head on over to lifeyana.com and go away your remark now.
Subscribe to Lifeyana
And if you wish to hear and skim extra Concussion Tales, actionable steps and inspiration, make sure to subscribe to the Lifeyana e mail listing when you’re there, so that you just by no means miss out on new supplies we consistently make for you.
If you wish to help this podcast, head on over to patreon.com/concussionstories. Thanks for listening to this concussion tales episode by Lifeyana. Could you may be properly and should you be comfortable.