Medical Gaslighting and Lyme Illness: The Affected person Expertise

Medical Gaslighting and Lyme Illness: The Affected person Expertise

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Printed December 29, 2023 in Healthcare

Authored by Jennifer L. Fagen, Jeremy A. Shelton, Jenna Luché-Thayer

Summary: Although there are roughly half 1,000,000 new instances of Lyme disease within the US yearly, in line with the CDC, it’s usually undiagnosed or misdiagnosed, which may end up in a continual, multisystemic situation. Lyme disease is a acknowledged public well being risk and is a chosen “notifiable illness”. As such, Lyme disease is remitted to be reported by the CDC. Regardless of this, each acute and continual Lyme disease (CLD) have been relegated to the class of “contested diseases”, which may result in medical gaslighting. By analyzing outcomes from a web-based survey of respondents with Lyme disease (n = 986), we elucidate the lived experiences of people that have been pushed to the margins of the medical system by having their signs attributed to psychological sickness, anxiousness, stress, and growing older. Additional, respondents have had their blood exams and erythema migrans (EM) rashes discounted and have been advised that CLD merely doesn’t exist. Consequently, a sequence of fruitless consultations usually outcome within the delay of an accurate analysis, which has deleterious penalties. That is the primary examine that addresses an intensive vary of gaslighting strategies skilled by this affected person inhabitants.

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