From the Heart for Lyme Motion:
Congratulations to all Lyme advocates! We’re making nice progress on Lyme and tick-borne situations once more this yr with a complete influence of $282 million on federal funding since we began our journey collectively in 2019. Thanks in your time, skills and treasure.
You make a distinction!
What’s Occurring
Now that Congress’s summer season recess is over and the tip of the fiscal yr is September 30, the price range is once more on the high of the agenda.
Whereas solely the Protection Appropriations invoice has made it by means of the Home Appropriations Committee with the Home-version of Labor-HHS appropriations nonetheless pending in Committee, the Senate Appropriations Committee handed all 12 payments for the primary time in 5 years and a few payments made it to the Senate ground for debate final week.
Since time is brief, a Persevering with Decision (CR) will probably be required to keep away from a authorities shutdown on September 30.
Right here is the abstract of Lyme and tick-borne illness appropriations for FY20 – FY24:
Extra particulars
The Home Appropriations Committee accredited $7 million within the Fiscal 12 months 2024 Protection Appropriations invoice for the Congressionally-directed Medical Analysis Program Tick-borne Illness Analysis program.
Whereas there was no enhance over Fiscal 12 months 2023, we didn’t lose any floor there. Within the Senate, the Appropriations Committee accredited a $1.5 million enhance over their Fiscal 12 months 2023 mark to $27.5 million complete for the Kay Hagan Tick Act within the FY24 Labor-HHS appropriations invoice
WHAT’S NEXT
Keep tuned for extra updates. We’ll ship the main points out as quickly as now we have them.
Finest regards,
Bonnie and Jeff
Bonnie Crater and Jeff Crater (who’re brother and sister) are co-founders of the Center for Lyme Action. It’s a non-profit devoted to serving to enhance federal funding for Lyme and different tick-borne illnesses.
For extra element, see hyperlinks under
HOUSE OF REPRESENTATIVES DEPARTMENT OF DEFENSE APPROPRIATIONS BILL, 2024
p. 256
TITLE VI
OTHER DEPARTMENT OF DEFENSE PROGRAMS
DEFENSE HEALTH PROGRAM
SENATE DEPARTMENTS OF LABOR, HEALTH AND HUMAN SERVICES, AND EDUCATION, AND RELATED AGENCIES APPROPRIATION BILL, 2024
https://www.appropriations.senate.gov/imo/media/doc/fy_24_lhhs_report.pdf
p.61-62
CENTERS FOR DISEASE CONTROL AND PREVENTION
EMERGING AND ZOONOTIC INFECTIOUS DISEASES
Lyme Illness and Associated Tick-Borne Diseases—With latest 2020 CDC information exhibiting that just about 500,000 People contract Lyme disease yearly, particularly in rural States throughout the US, an improved understanding of the illness is important to the well being and wellbeing of People. CDC monitoring of Nationally Notifiable Infectious Ailments reveals that Lyme disease is the commonest tick-borne illness and the commonest vectorborne illness in the US. In sufferers that suffer from long-term issues related to Lyme disease, clear therapy pathways are sometimes missed because of inaccurate and incomplete testing. The Committee gives $27,500,000, a rise of $1,500,000, to increase the applications licensed underneath the Kay Hagan Tick Act (Public Regulation 116–94) to advertise a public well being method to fight rising circumstances of tick-borne illnesses. In distributing these funds, the Committee directs CDC to prioritize entities targeted on Lyme disease and associated tick-borne illnesses within the areas of surveillance, management, prevention, prognosis, therapy, and schooling. The Committee directs CDC to develop and implement strategies to enhance surveillance to extra precisely report the illness burden, together with by means of the event of actual time information for reporting Lyme disease and different tick-borne illnesses in addition to a course of for estimating the prevalence of Submit-Remedy Lyme Illness Syndrome. The Committee directs CDC to direct funding to enhance early prognosis of Lyme and associated tick-borne illnesses to forestall the event of late stage illness and extra critical and long-term incapacity. The Committee acknowledges the rising public well being risk of Lyme disease and associated tick-borne illnesses and directs CDC to supply help in endemic areas in addition to areas not but thought of endemic. Given the influence of Lyme disease and the standing of ongoing scientific trials, the Committee requests a report inside 180 days on CDC’s analysis so far and suggestions on actions wanted to facilitate a profitable Lyme disease vaccine rollout that can construct confidence and encourage uptake ought to a vaccine be accredited by the FDA.
p.126-127
Lyme Illness and Associated Tick-Borne Diseases.—The Committee urges NIH to develop new instruments that may extra successfully forestall, diagnose, and deal with Lyme disease, together with its long-term results, and different tick-borne illnesses. The Committee encourages the promotion and improvement of potential vaccine candidates for Lyme disease and different tick-borne illnesses. The Committee urges NIH to conduct analysis to higher perceive modes of transmission for Lyme and different tick-borne illnesses, together with vertical transmission.
The Committee encourages NIH to incentivize new investigators to enter the sector of Lyme disease and different tick-borne illness analysis. The Committee encourages NIH to coordinate with CDC together with by means of the HHS Tick-borne Illness Working Group on publishing experiences that assess diagnostic developments, strategies for prevention, the state of therapy, and hyperlinks between tick-borne illness and psychiatric sicknesses.
SENATE DEPARTMENT OF DEFENSE APPROPRIATIONS BILL, 2024
https://www.appropriations.senate.gov/imo/media/doc/fy24_defense_report.pdf
p.264
TITLE VI
OTHER DEPARTMENT OF DEFENSE PROGRAMS
DEFENSE HEALTH PROGRAM
Peer-Reviewed Medical Analysis Program.—The Committee recommends $370,000,000 for the Peer-Reviewed Medical Analysis Program. The Committee directs the Secretary of Protection, at the side of the Service Surgeons Basic, to pick medical analysis initiatives of clear scientific advantage and direct relevance to army well being. Analysis areas thought of underneath this funding are restricted to: accelerated getting old processes related to army service; autism; burn pit publicity; celiac illness; computational biology for precision well being; congential cytomegalovirus; congential coronary heart illness; dystonia; consuming problems; Ehlers-Danlos syndrome; far-UVC germicidal mild; fibrous dysplasia/McCune-Albright syndrome; focal segmental glomerulosclerosis; meals allergic reactions; Fragile X; Guillain-Barre syndrome; hepatitis B; hereditary ataxia; hydrocephalus; inflammatory bowel illness; interstitial cystitis; lymphedema; malaria; maternal psychological well being; mitochondrial illness; musculoskeletal problems associated to acute and persistent bone situations and accidents; myalgic encephalomyelitis/persistent fatigue syndrome; myotonic dystrophy; nephrotic syndrome; neuroactive steroids; neurofibromatosis; orthopedic; Parkinson’s; peripheral neuropathy; polycystic kidney illness; proteomics; pulmonary fibrosis; reconstructive transplantation; respiratory well being; Rett syndrome; scleroderma; sickle-cell illness; suicide prevention; tickborne illness; tuberous sclerosis complicated; vascular malformations; and Von Hippel-Lindau syndrome. The Committee emphasizes that the extra funding offered underneath the Peer-Reviewed Medical Analysis Program shall be devoted solely to the needs listed above.
